Project update: “In a world where decisions of all kinds are based on information derived from large datasets, ensuring people have access to information and understand its implications is more important than ever. The way most statistical information is made accessible is visually using charts and graphs, and the choice of which visualization to use is generally guided by the nature of the data to be communicated. However, research led by ATLAS PhD student Keke Wu finds that for those with intellectual or developmental disabilities (IDD), some kinds of data visualizations are harder to interpret than others.” Learn more here:


cover of booklet titled National Historic Recognition Project 2000 - 2020 booklet

The State of the States in Intellectual and Developmental Disabilities is delighted that Project Advisory Committee members Julia Bascom and Tia Nelis along with Project Founder David Braddock and former team member Mary Kay Rizzolo have been selected for recognition as a for their contributions to the field.

The National Historic Recognition Project: 2000-2020 is an effort by a dozen national and regional organizations to recognize the key individuals who have contributed to the transformation of the field of intellectual and developmental disability within the U.S. over the past 20 years. This project follows the 20th Century Historic Recognition Project, which recognized notable thought leaders in our field from the preceding 100 years.

Nominations for this recognition were accepted through December 2019. Due to the extraordinary situation of the COVID-19 pandemic, it is not clear when selectees could be recognized at an in-person gathering; however, a commemorative booklet, 2020 National Honors Recognizing Significant Contributions in the Field of Intellectual and Developmental Disabilities in the U.S. Between 2000 and 2020 is now online that describes the honorees’ contributions.


For more information, contact Peg Gould at

State of the States in IDD Project Contributed to a White Paper on Outcomes and Metrics to Support States’ Implementation of the HCBS Settings Rule

Learn about it here.

State of the States in IDD Contributed to an Administration on Community Living Sponsored White Paper

Available here.

A New Survey. We now have a brief survey when you access our Website. The survey software records each URL, so you will not need to complete the survey more than once (per device). The survey data will be summarized, and posted on our Website.

In the last study, we collaborated with AIDD and with the other Project of National Significance (PNS) Longitudinal Data Collection projects in the production of “one-pagers” for each state. Follow this link to those “one-pagers.”

Testimony to the Federal Commission on Long-Term Care

Dr. David Braddock provided testimony to the federal Commission on Long-Term Care on the topic: “Populations in Need of LTSS and Service Delivery Issues.” The testimony can be viewed at: presentation slides, written testimony, and the Commission Final Report to Congress.

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