Welcome to the website for the State of the States in Intellectual and Developmental Disabilities Project, administered by the University of Colorado, and funded in part by the Administration on Intellectual and Developmental Disabilities.
Established in 1982 to investigate the determinants of public spending for intellectual and developmental disabilities (IDD) services in the United States, the Project has established a 39-year record of revenue, spending, and programmatic trends in the 50 states, the District of Columbia, and the United States as a whole. Analysis of the rich detail of the data base demonstrates the impact over time of federal, state, and local government fiscal policy. The data illustrate important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, and Medicaid Waivers. Demographic data include general population, personal income, total state budget, and Survey of Income and Program Participation data.
Financial and programmatic trends in the United States are presented in a series of 11 books. The most recent 11th Edition is The State of the States in Intellectual and Developmental Disabilities: 2017, by David Braddock, Richard Hemp, Emily Shea Tanis, Jiang Wu, and Laura Haffer. The book is available for purchase from AAIDD by calling 202-387-1968, or contact us directly.
The State of the States Project has produced over 300 publications. A list of selected project publications is available on this web site. The Project's research findings have been disseminated in over 500 presentations delivered in 45 states and seven foreign countries. Here are examples from China and Alberta, Canada.
Amie Lulinski, PhD, returns to the State of the States Project! A colleague at the University of Illinois at Chicago, Dr. Lulinski co-authored The State of the States in Developmental Disabilities 2013: The Great Recession and Its Aftermath (Braddock, Hemp, Rizzolo, Tanis, Lulinski-Norris, Haffer, & Wu, 2013). Lulinski, along with Dr. Mary Rizzolo and Dr. Tamar Heller, contributed to UIC's analyses of state-operated developmental centers in Illinois, co-authoring UIC Disability Research Briefs. Dr. Lulinski took the lead on institutional closure and transition outcome studies for the Jacksonville and Murrary Developmental Centers in October 2012 (Lulinski-Norris, Rizzolo, & Heller) and for the Lincoln Developmental Center in April 2012 (Lulinski-Norris, et al.).
Lulinski was a key contributer to the Project's comprehensive Waiver study, co-authoring "Home and community-based services (HCBS) Waivers: A nationwide study of the states," Rizzolo, Friedman, Lulinski-Norris, & Braddock, 2013, Intellectual and Developmental Disabilities, 51(1), 1-21.
Dr. Lulinski served as Secretary to the Board of the Arc of Illinois, and during 2014-16 was the Director of Research and Evaluation for The Arc United States.
Amie, we're glad to have you back on the State of the States Project!